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Monday, December 18, 2017

Things are Changing and Time Marches on in the Little RV

As I write this post I am sitting across the room from Rob at my daughter's house in Portland, Oregon. Rob has chosen to discontinue dialysis. Without dialysis he cannot survive. 

We have placed him in Hospice care. They will make sure he is comfortable and help us through this transition. He's just across the room in the hospital bed they brought for him yesterday. He's sleeping and surrounded by people who love him very much.
 
Eating Chinese food!

I feel such a mix of emotions. I'm so grateful for the time we have had together. We were married in 1998 and within just a few months he was in the hospital having a triple bypass. There have been many, many episodes of serious illness since then. With each illness and new diagnosis he has become more and more disabled. 
In Key West last winter

Over the years we have often discussed his wishes for "when the time comes". I am confident I know what he wants and doesn't want. 

For now please keep us in your prayers. 
Thanks for everything blog family.
Juley

23 comments:

  1. So sorry . You are in my thoughts and prayers.

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  2. I'm so sorry for this difficult decision you and Rob have had to make. Hospice was wonderful to us earlier this year during my mother last weeks, and I hope you find the same comfort. I'm glad you have family around, and I am praying for you all.

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  3. Of course your posting brought tears to my eyes. His wishes should be honored, although it is hard not to want to do something to make him better.

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  4. Thank you for letting everyone know how Bob is doing. I'm sorry the prognosis isn't what we had all hoped for, but keeping with his wishes is a wonderful gift for him. I know how much he loves you and you him; so glad you found each other and have been on this journey together. Seeing the US together and driving that RV around (and visiting old friends along the way) - what fabulous memories to take with you (and us). You know where I am should you need me for anything. Sending you love galore from the Jersey Shore <3 <3 <3

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  5. I’m so sorry Juley! I cannot fathom what you are going through. We pray that Rob is free of pain. Im at a loss for words... We love you all!

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  6. I am so sorry to hear this latest update about Rob. Thinking of you and your family in these difficult days.

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  7. Sometimes all we can do is accept and silently watch...Rob and you both have the strength of your love for each other and family. Our thoughts are with you all.

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  8. So sorry to hear this news. My thoughts are with you.

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  9. Juley, may God give you strength in the days ahead. Though it is sometimes difficult to honor a spouse's request we do it because we love them. Prayers for Rob, you and your family during this time.

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  10. Juley sending you and your family my love and prayers , how blessed was I to meet you on Pensacola Beach last year & to think we are now both in Portland ,so happy you and Bob had those wondertgil traveling years together , I'm here if you need anything Juley ❤️ I'm so sorry for your loss

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  11. I have no words to adequately express my sorrow but am so glad to have met you and seen Rob again after so many years. God bless you Juley. Please keep in touch and visit when you are near Virginia again. Much love to you and all the family.

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  12. Juley, I've been zoned out the last week and just this very moment read about Rob and his decision. I know we've never met, but I care about you and Rob, as a sister. I had no idea and I am profoundly sorry. I am glad that the last 5 and a 1/2 years were great ones, spent with only the two of you. A legacy that will go on for generations. I cannot express the heartache I feel for both of you. Rob was courageous, you were brave, far more brave than I ever could have been, with his decision, and the pain that you are left with. I know we've only been FB friends, but I grew to care about you very much, and have known Rob since I was in my teens. I am here for you, with whatever you need. People always say that, but I absolutely mean it. Much love to you and Rob's children at this very difficult moment in your life. Love, Frances

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  13. I am so sorry to read this news. I have followed your journey and enjoyed the lows and highs. May you find the peace and courage. One hour at a time and then a and a week and then start over. My Tom died 25 years ago and I still miss him even though I remarried. There are soulmates and husbands. You were soulmates. May God bless you. Sincerely Janet
    PS. Please blog about this next journey.

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